STEFANI BRIELLE FELBER- Our Little Angel Face

All we ever want is to believe our children will live a healthy and happy life. On February 5, 2009 we saw our world crumble when we found out that Stefani, our youngest of 3, had a brain tumor. Thus begins our journey with cancer.
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Background Story

Stefani was born on April 1, 2008. When she debuted into the world via a c-section I finally felt that my family was complete. Her angelic face, and calm demeanor was refreshing and much needed from the craziness of having a 3 year old daughter Arianna and a 2 year old son, Benjamin. Stefani was developing and growing and hitting many of her early milestones until about 4 months old. We then began to see gross motor skills taking a back seat. Stefani was not able to roll over, push to hands and knees, push to sit up or get into positions to crawl. The pediatrician felt that was OK and never made a big deal about it. When Stefani was about 6 1/2 months old she developed a double ear infection and a nasty cold...for 2 months straight we were at the doctors office every week. I kept saying something else is going on, but they didn't have any "medical proof" to go on. On Dec. 26, 2008 we took Stefani back one more time and at this time I brought to the doctors attention that not only was Stefani still sick, but she was not able to turn her head to the left and would turn her whole body as one unit. She was diagnosed with torticolis. Torticolis at almost 9 months old????? We took it into our own hands to get Early Intervention involved for which she was approved for PT. Next we saw a neurologist and an orthopedic surgeon. Both doctors had given scripts for an MRI but the appointments were set for 3 and 4 weeks later. They believed this was not an emergency and Stefani could wait. Stefani's body began to deteriorate by the day and the day before we brought her to Schneider Children's Hospital ER her lower lip began to droop. Our EI case worker pushed us to go to the ER. Off we went! We had to fight like hell to stay and to get a CAT scan. They were sending us home with neurologist names and numbers to follow up with... After the CAT scan about an hour passed and the news that we feared the most was placed before us...Stefani had a brain tumor. After being admitted to the hospital, Stefani was given an MRI which showed the tumor on her Brain Stem and in her 4th Ventrical. She had surgery on Feb 10, 2009 to hopefully be able to resect some of the tumor. Her surgery could have taken up to 8 hours, but when the phone rang after 3, I knew they weren't able to remove anything. Stefani will be starting chemo in the next week or so to treat a cervicomedullary glioma (astrocytoma) which extends from C5 Vertebrae through the medulla and into the 4th Ventrical. We pray that our angel face will be okay, and that one day she will be able to tell her courageous story.